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  • Iranian Neuromuscular Association

    Association for the Support of Patients with Neuromuscular Disorders

  • Neuromuscular

    Association for the Support of Patients with Neuromuscular Disorders

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Neuromuscular diseases, as the name implies, include the range required for neuromuscular or musculoskeletal disorders.

These diseases include a large number of diseases that are mainly genetic, which are divided into neuropathies (of nerve origin) and myopathy (of muscle origin).
Types of SMA and Charcot Marie Tooth are examples of neurological diseases.
Types of dystrophic diseases, including Duchenne, virgin and congenital, and types of limb gills, as well as other types of myopathy are examples of diseases of muscle origin.

Useful information about neuromuscular diseases

بیماری عصبی عضلانی

Types of neuromuscular diseases

Neuromuscular diseases cover a wide range of diseases. The classification of these diseases is usually based on such factors as the origin of the disease (nerve or muscle), progression, physical symptoms and muscles involved, and finally the gene affecting the disease. In this section, the types of diseases are classified and descriptions related to each of the diseases are discussed.

List of contents related to different types of diseases

Problems and actions

In this section, the main problems faced by different types of nerve / muscle patients and its solutions are discussed. Obviously, it should be noted that due to the variety of diseases and also the different complications and problems of the disease, even between patients of a particular type of disease, each patient may face a certain number of these problems and therefore it is expected that patients And their dear family should not expect all the problems to happen to them.

True and false beliefs

There are many assumptions and beliefs between patients, family and treatment community about these diseases. On the one hand, due to the lack of resources and knowledgeable people, and on the other hand, due to incurable or untreated many types of neuromuscular diseases, many incorrect cases and incorrect recommendations have been formed in this regard, which we try in this section, Let’s deal with these cases.

Link to treatment in category

Treatment news

In this section, the latest news on new treatment findings and effective measures to improve the quality of life are presented.

Link to Specialized content in category

Specialized areas

Different specialized fields and scientific materials of each field are collected in this section for professors, researchers and people interested in each specialized field. The main areas of specialization are:

  • Neuromuscular
  • Genetics
  • Rehabilitation
  • Orthopedics
  • Lung
  • Heart
Link to Patient reports and history in category

Patient reports and history

Examples of patient histories are reported in this section.

about us

The purpose of forming this association

Most neuromuscular patients, in addition to poor physical condition and ongoing disease progression, have very poor living conditions. They do not have the necessary information for the diagnostic and treatment course. There is no accurate information and database of these patients. The purpose of forming this association is to provide information and financial support, as well as to explain and pursue the rights of these patients under the guidance of the best neuromuscular and genetic physicians in the country and the patients’ families who are members of the founding board.

Axes of activity and action plan

The activities and the master plan of the association are approved by the board of directors of the association and are made available to the public.

Founding Board

  • Engineer Seyed Jafar Seyed: Managing Director
  • Dr. Shahriar Nafisi: Chairman of the Board
  • Dr. Farzad Fatehi Vice Chairman of the Board
  • Dr. Hamid Fateh: The main member of the board
  • Engineer Mohammad Reza Alavi Manesh: Treasurer
  • Mr. Hossein Sobhani: Inspector

Groups and social network pages

Telegram

Iran Neuromuscular Group

@neuromuscular_iran

Instagram

@neuromuscular_iran

The latest neuromuscular news

از بین بردن میلین را در موش ها کاهش داد CMT1Aژن درمانی

September 15, 2021/by admin